Great Strides 2010 - Team Joyliana's Joy Seekers

Our beautiful daughter Joyliana was diagnosed with cystic fibrosis in March 2010. We love her very much and want her to not only live a long life but to have a good quality of life as well. Great Strides is one way to help make that happen.

GREAT STRIDES is the Cystic Fibrosis Foundation's largest and most successful national fundraising event. This year, I'm walking in the GREAT STRIDES walk at the Provo - Seven Peaks Resort walk on June 5, 2010. Please help me meet my fundraising goal of $50 by sponsoring me. Your generous gift will be used efficiently and effectively, as nearly 90 cents of every dollar of revenue raised is available for investment in vital CF programs to support research, care and education.

Making a donation is easy and secure! Go to: http://www.cff.org/Great_Strides/ReginaPearson then just click the "Click to Donate" button on this page to go to make a donation that will be credited to my team. Any amount you can donate is greatly appreciated!

Cystic fibrosis (CF) is a devastating genetic disease that affects tens of thousands of children and young adults in the United States. Research and care supported by the Cystic Fibrosis Foundation is making a huge difference in extending the quality of life for those with CF. However, we continue to lose precious lives to CF every day. That's why your help is needed now more than ever to ensure that a cure is found sooner - rather than later. To learn more about CF and the CF Foundation, visit www.cff.org.

Together, we can make a difference in the lives of those with CF! Thank you for supporting Joyliana, the mission of the CF Foundation, and GREAT STRIDES!

Thanks to everyone for your support!

Joyliana's Joy

Joyliana is not being her normal colicky self. She used to cry for 9 to 12 hours a day. However, I think it's safe to say that the new normal is happy! The doctors put her on more pancreatic enzyme, upped her dosage of Prevacid, added Zantac, took me off dairy products so it doesn't get in my milk, and any formula she does get is something disgusting smelling and worse tasting called Alimentum. Alimentum doesn't have the dairy proteins that they think she's allergic to. I think with all of these together it is making a huge difference!

She is sleeping like a newborn. The Dr. told me to enjoy it. :D They think she is finally catching up on the sleep she didn't get for months and months. I feed her, change her, she plays and smiles for about 15 - 20 minutes and then sleeps until it's time to eat again. I love it!